How is there any hope left? - Instructions for keeping hope

Recently, there has been a resurgence of debate about children in the neurosphere as interveners in the welfare state and prolonged access to help. Support for parents of special children The Special Forces website has already begun to ask if there is any hope left, will there be help for the child?

The Special Forces website gathered a few vital tips for all nursing professionals on how they can support the survival of hope in families with special children. These excellent guidelines are sure to benefit other professionals working with families with special children. (So if you belong to the champion group mentioned above, read that text right away !)

Many parents seriously have to think about the question of hope during their own care and upbringing. How do you maintain hope for the better when you can no longer struggle with difficulty or fight for the services you need? Life in a state of continuous survival limits the possibilities and advances out of the field of vision.

Hope helps to cope

We were with Köpö (6 years) during the ward period in the psychiatric ward for young children, where we tried to address the mechanisms and ways of dealing with the child's awkwardness and behavior. With conflicting feelings, we had to say that there might not have been much new in the episode, but for me personally, the most important gift was that I got confirmation that we were already doing the right thing.

The importance of this affirmation cannot be underestimated, as one of the paths that lead to despair is often the need to try long and hard, even for years, to apply time-consuming and energy-intensive means to support the life path of a special child. When you don’t want to see decent results despite your attempts, life starts to feel like you are banging your head on a wall. That's where hope begins to fade somewhere. That’s why we would all need someone else on a regular basis to say hey you're in it, just keep going, you’re doing just right!

Now I have gained new energy and endurance in parenting. Although at times I don’t feel at all understanding my own child’s mental movements, being able to help him through difficult moments, and not wanting to go through similar situations over and over again, I’ve still managed. The mere increase in my own endurance has greatly improved my relationship with my child.

5 tips for maintaining hope

But how can hope be maintained? I have listed ways to make a difference.

Recognize which things are good and which are going in a better direction. Many things in or around your life are certainly just fine and worth relying on. There is also a lot going on in society. Although the slowness of change is sometimes painful, I can say from experience that many issues in the care and support of children with neuroscience have also progressed in recent years.
Think about what kind of dream situation you would like to end up in. What kind of family life would be good for you? After that, think about what is the first step you can take yourself in that direction. Maybe you focus on finding yourself moments of rest in everyday life? Maybe you are looking for family care support? Maybe you decide to look for peer support for yourself?
And so get that peer support for yourself. You see things much more clearly and get relief when you hear what others have been through. You get confirmation from peers that you are doing the right thing. You are good, you are enough.
Be sure to ask things for yourself as well. This is surprisingly difficult, but if you never ask yourself for anything, you may unknowingly submit to life or get bitter. And no one wants you to become a martyr, least of all you. If, on the other hand, you understand the request, you can surprisingly get a lot.

Exercise gratitude. This may sound like corn, but it really works. Learning to be grateful for what is and what you have gained gives you a healthy perspective on your own life and notices many things in your life that you can be happy with.